Shared Ingredient Ignored: Why a Florida DCF Social Worker’s Statement on Trikafta vs. Orkambi Was False
A bodycam video shared on X by @BrokenTruthTV shows a Florida Department of Children and Families (DCF) social worker removing 5-year-old Kenlee Zuraff from her mother, Joy Zuraff, in March 2024. Kenlee has cystic fibrosis (CF), a serious lung and digestive disease. The family and supporters call this “medical kidnapping” because they believe the state stepped in […]
From Breakthrough to Boxed Warning: Trikafta’s Liver Failure Risks and Implications for CF Care Decisions
Trikafta is a prescription medication used to treat cystic fibrosis (CF), a genetic disorder caused by mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene, leading to impaired chloride transport, thick mucus accumulation, and progressive damage to the lungs, pancreas, and other organs. Trikafta combines elexacaftor and tezacaftor (correctors that improve CFTR protein folding […]